Federal law mandating comprehensive care of breast cancer patients

federal law mandating comprehensive care of breast cancer patients-35
Approximately Knowledge that you have this mutation can literally be a matter of life or death.Now, with the future uncertain as to what will replace the Affordable Care Act (ACA), the ability to access, protect, or act on that knowledge may be at risk.

The chances of having ovarian cancer are also greatly increased—between 40 to 60 percent with a BRCA1 mutation and 16 to 27 percent for BRCA2.Preemptively finding out one has a BRCA mutation affords patients options like participating in intensive screenings, taking preventive medication, or opting for risk-reducing surgeries to avoid related cancers.In December 2014, I found myself staring through tears at a letter that read “positive for a deleterious mutation.” It is no exaggeration to say it changed the course of my future.Most of them denied coverage for pre-existing conditions—their reason for being—for up to a year after enrollment.” Furthermore, while lifetime caps are currently not on the table, Schlager describes a disturbing scenario, should that change: “Whereas before cancer patients might have to declare bankruptcy because they’ve hit their [lifetime] cap with their insurance, that went away under ACA.A person who has cancer, especially someone who has ovarian cancer, where they might have to go through four, five, six regimens of treatment …Already, as previously noted, women must pre-qualify to be covered under insurance. As Schlager describes, there are known disparities in care seeking—not only in genetic testing but also when a woman goes to the doctor for follow-up treatment—that are largely contingent upon insurance coverage.She noted that “the financial aspect of prevention and early detection and treatment” has a more severe effect on women of color and low-income women.may be an option for those who can afford it; Schlager also hypothesizes that many traditional labs will offer financial assistance to make testing more affordable.Still, the costs of BRCA testing skew higher for those who do not already have an identified mutation in their family as they undergo comprehensive, rather than specific, mutation panels.“We’re hopeful that [cutting preventive services] won’t be the case—that they’ll see value in prevention—but nothing is set in stone yet.” Even so, Professor Mark A.Rothstein, the founding director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine, anticipates that genetic testing, due to its high costs, may be one of the first services to go.

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